Tony Ryan and Amanda Lillis are ambassadors for this year’s campaign
The Irish Motor Neurone Disease Association (IMNDA) is making a final call for tea lovers across Louth to register for the annual Drink Tea for MND campaign. This popular initiative, now in its 16th year, invites individuals, businesses, and communities to come together, enjoy a cup of tea, and raise funds to support people living with Motor Neurone Disease (MND).
As the IMNDA marks 40 years in 2025, this simple yet impactful campaign continues to unite tea drinkers nationwide, with every tea party making a difference for families affected by MND. Whether you’re hosting a small gathering at home or organising a larger event at work or in your local community, every contribution counts.
Tony Ryan and Amanda Lillis are ambassadors for this year’s campaign, are highlighting the importance of the IMNDA’s work by sharing their personal story. Tony, also known as Schillaci, was diagnosed with MND in April 2022 after a year-long journey of tests and referrals. Tony and Amanda, along with their four children—Corey (28), Tonieka (25), Zekeisha (17), and Zantianna (12)—are determined to make the most of every day despite the challenges of living with MND.
Amanda shared: "MND is a cruel disease that takes so much away, yet we are determined to make the most of every day. The hardest part for Tony is not being able to do the things he used to do on his own. But the support we’ve received from the IMNDA has been a lifeline. It’s not just practical help but also emotional support and the assistance with equipment that truly makes a difference. We need more awareness, so others like us can find the help they need."
"When we recently went to buy clothes, we had a humiliating experience where we were told that Tony couldn’t bring someone into the fitting room to help him. It's an example of how MND isn’t always visible to others, but the struggles are real. We hope that by sharing our story, more people will understand MND and why fundraising is so crucial. The IMNDA has been a key part of our journey, and we are so grateful for all they do."
The IMNDA relies heavily on fundraising to sustain over 85% of its income, funding vital support services including care grants, counselling, and equipment to improve the quality of life for those affected by MND.
How to get involved:
• Register your Drink Tea for MND event at IMNDA's website.
• Host your tea party at any point this Spring and raise vital funds.
• Share your event on social media with the hashtag #DrinkTeaForMND to boost awareness.
Tony and Amanda’s message is clear: “Every cup of tea, every event, and every donation brings us closer to a world where MND is understood, and families get the support they need.”
For more information or to register your tea party, visit IMNDA's Drink Tea for MND page: https://www.imnda.ie/event/
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