A LOCAL woman whose daughter has a life-threatening illness has written and published a childrens’ book about Cystic Fibrosis (CF).
Louise Byrne from Togher was inspired to write the book for children with CF after her young daughter, Ava Li, was diagnosed with the condition.
CF affects organs such as the lungs and digestive tract and reduces life expectancy. However, treatments have improved in recent years and it’s now possible for people with CF to live into their 40s or even beyond.
“The book is for both kids and their parents as it has practical and positive tips on each page along with a little rhyming story. It’s been very well received in Ireland and by the global CF associations so I am delighted by the reaction,” said Louise.
The title of the book is ‘Can You See What I See?’. According to Choice Publishing, it’s an “engaging story of a little person with CF and a superhero-style approach to health challenges”. It’s a heart-warming and fun story for all kids with practical and positive tips for parents included.
Louise’s book is available to purchase on the publisher’s website http://www.choicepublishing.ie/index_files/louisebyrne.htm. However, she has also printed copies which can be purchased from her directly by emailing firstname.lastname@example.org.
Ireland has the highest incidence of CF in the world. Louise was initially shocked when doctors told her that Ava Li had CF as there was no known history of the disease on either side of the family.
One in 19 people are carriers of the CF gene in Ireland and if two people with the CF gene have a baby, the child has a one in four chance of having CF.